"The nuances and complexities of living with a CHD cannot be fully captured by medical records and research studies alone. The CHI provides a critical piece of information that, until now, was missing from the research landscape on ACHD: the patient voice." — Ken Woodhouse, CHD patient CHI Patient and Scientific Advisory Board member

“The CHI provides vital information for experts to better understand and treat CHD. Many adult patients, including myself, want our experiences documented and want everything we've been through to mean something. Our participation builds a network and self-knowledge that will make our input matter for millions of others, now and in the future.” — Ruth Phillippi, CHD patient

“It’s very important to me that a person of color, like myself, is able to participate… The CHI allows us to share our health stories, be a support system, and let the younger generation who have congenital heart disease (CHD) know that you can grow up and be an adult and live what we know as normal lives.” — Alison Gill, CHD patient

“Genomic medicine has the potential to transform CHD care. Patient-centered research organizations have the greatest ability to lay the foundation for future breakthroughs. The inspiring efforts of CHI participants gives me hope that the next generation of advances is within reach.” — Matt Lewis, MD, cardiologist