Researchers
The Congenital Heart Initiative (CHI) and CHI-RON are building the most robust patient-driven research infrastructure focused on adults with congenital heart disease (ACHD) in the United States. We invite academic, clinical, and community-based researchers to partner with us to advance knowledge, improve outcomes, and inform lifelong care for the ACHD community.
Collaborating with the CHI
We support investigator-led research that aligns with our mission and values. Whether you’re seeking access to patient-reported outcomes, EHR-linked datasets, or a diverse patient community, CHI provides a unique platform to power your work.
How to Submit a Proposal
To propose a manuscript, abstract, grant, or presentation using CHI or CHI-RON data:
Complete the proposal intake form.
Download HereEmail the form to: ACHDresearch@childrensnational.org
Proposals will be reviewed by the CHI Patient and Scientific Advisory Board for alignment with ongoing work, scientific priority, and feasibility.
Selected proposals will be presented to the CHI Steering Committee and advisory board.
Please submit all abstracts at least one week prior to the deadline, and conference posters or presentations 2–4 weeks before the event. Allow up to 10 business days for approval.
Publication & Authorship Guidelines
All publications must follow CHI-RON authorship and acknowledgment requirements. Key highlights include:
Corresponding author is responsible for submission logistics and communication
Authorship order should be agreed upon early and revisited as needed.
Each CHI-RON data-contributing site may suggest a co-author
Patient co-authors are recommended by the CHI Advisory Board
All authors must meet ICMJE authorship criteria
Acknowledging CHI and CHI-RON
All accepted papers, presentations, and proposals must acknowledge CHI or CHI-RON and PCORnet, as applicable. Standardized language will be provided. You must notify the CHI team within 15 days of acceptance.
For complete publication guidelines, including authorship criteria, proposal submission steps, and acknowledgment language, please download the CHI Publication Policy.
Ready to Get Started?
Submit your proposal or reach out with questions: ACHDresearch@childrensnational.org
We’re proud to support research that centers patient voices and transforms ACHD care.