Published Papers

  • Impact of Adult Congenital Heart Disease Specialist Visits on Emergent Admissions

    By: Agarwal A, Duan R, Bayne J, et al.

  • Using PCORnet® and Patient Engagement Strategies to Improve Diversity Among Research Participants in the Congenital Heart Initiative

    By: Anitha S. John, Scott Leezer, Carton, Thomas, et. al.

  • Prioritizing patient-centered research in adult congenital heart disease and pregnancy

    By: Kashvi Singh, Mindi Messmer, Anitha S. John, et. al.

  • Pregnancy care experiences for adults with congenital heart disease in the United States

    By: Tripti Gupta, Mindi Messmer, Anitha S. John, et. al.

  • Improving Maternal Outcomes in Congenital Heart Disease: A National Call to Action

    By: Mindi Messmer, Anitha S. John

  • Understanding gaps in guideline-recommended adult congenital heart disease care: Data from 12 US health care centers

    By: Joseph Bayne, Rong Duan, Lindsey Rudov, et. al.

  • Patient Engagement in Research: Considerations in Creating a Registry for Adults with Congenital Heart Disease

    By: Ruth Phillippi, Scott Leezer, Mindi Messmer, Danielle Hile, Anitha S. John

  • Patient-Reported Outcomes Among Adults With Congenital Heart Disease in the Congenital Heart Initiative Registry

    By: Scott Leezer, BS; Rittal Mehta, MS; Anushree Agarwal, MD; et. al.