Ruth Phillippi

“A robust registry with patient-reported outcomes provides information for experts to better understand and treat CHD while creating vital community and self-knowledge. Many adult patients, including myself, want our experiences documented and witnessed; we want everything we've been through to mean something. By contributing my information and experiences to the CHI, I am actively building a network of providers, researchers, and other CHD patients/loved ones who will make my input matter for millions of others, now and in the future.” - CHD patient and CHI registry participant who works on the CHI core team