Ken Woodhouse

"The Congenital Heart Initiative (CHI) provides a critically important piece of information that, until now, was missing from the research landscape on ACHD: the patient voice. The nuances and complexities of living with a CHD cannot be fully captured by medical records and research studies alone. The opportunity for patients to report their information from their own perspectives will, I believe, greatly improve the landscape of CHD care." — Ken Woodhouse, CHD patient and member of CHI Patient and Scientific Advisory Board + Patient and Family Advisory Board of the Adult Congenital Heart Association